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Remission From Ptsd?

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bhavana

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One problem about the DSM is that symptoms associated with PTSD, depression and other anxiety disorders resolution is "remission." But, what about recovery? Is that a goal? Is it possible?

I feel that I'm on the way to recovery, of hoping that this won't happen again, but is that realistic? After a lifetime of neglect and abuse and not feeling safe, I worked for years to try to not let the past live in the present. And, it has worked to an extent. But, I have this anxiety about getting better. It just seems so elusive. I felt better before at lucid points in my past but it never lasts.

Am I just crazy?
 
I think you need to define "recovery" and "remission" for yourself.

To me, they are one and the same in the context of PTSD. Why? Trauma has changed us for life. We will never be the people we would have been without having been traumatized. We will always have a lower threshold for stress and trauma than the non-PTSD person, and as such, a relapse is likely if we become triggered or stressed.

You don't want any of your trauma, ie negelect or abuse to happen again, and hopefully it won't. But the truth of the matter is that something INCREDIBLY insignificant to most people can push us into full blown PTSD. I should know, it happened to me. Yes, my original trauma was huge, but the trigger, seemingly inconsequential, something that most people could brush off easily.

It sounds like you're not living in the present which is sort of the goal of PTSD treatment. Yes, many of us are stuck in the past (sort of the definition of PTSD), but for me, personally, one way I learned to cope was by living in the future. It sounds like you are doing a bit of that, and should focus more on fully living in the present moment. Its no longer the past that is troublesome so much, now its your future that's holding you back.

Why worry so much about the difference between full recovery and remission? Seems a bit pointless to me in that making the distinction between the two in NO way, shape, or form hinders your healing. That is, you can throw both terms out the window and pay them no heed, focusing on today and your healing, and get just as far, if not farther, than someone who gets caught up in the semantics of defining these two terms. And, in my way of thinking, this is indeed self sabotage. You're focusing so much on the unknowns of tomorrow rather than saying "eh, screw it, I'm gonna simply push myself as hard as I can to heal, and whatever happens, happens." Eh, this is sort of what I've done. I've been told by a number of people that I am simply not going to heal (much), that "recovery is not expected". If I listened to those voices, as you are "listening" to the DSM, then I would have given up a long time ago. Simply put, you're letting an imperfect manual define your healing. (Why should it?)

Oh, and one thing I would like to add.....every so often a new post pops up about someone touting how they've felt "sooo good" for a few weeks, or even a few months and claim to be "recovered". Nine times out of ten these people come back at a later point, devastated because they felt they were healed and the evil PTSD monster reared its head again. I think that in terms of PTSD, it can indeed be better to think in terms of remission instead of "healed" or "recovered" as with remission, one keeps it in the back of their mind that the PTSD could come roaring back, whereas with "recovered" one seems to be less likely to continue to use all of the skills and such that got them to that point. And when you have a relapse from "recovered" verses "in remission", it seems to be a bit more devastating to people. Instead of thinking "oh, this is a setback, I'll get through it again" the attitude seems to be more along the lines of "why me? I was healed! I thought I had this beaten!" (along with a lot of other statements along the lines of self-blame and such.)
 
Sure, why not?

Borrowing from a very different but equally life altering condition, alcoholism. Most alcoholics, if they are able to get off, and stay off the sauce. Can never ever touch it again, or else they will end up back where they started. But, there are a rare few. Who are able to actually only have one or two, when appropriate. It is very rare, but it does happen. I would call that recovered.

I realise that there is a massive difference between alcoholism and ptsd. But who is to say that there aren't people out there who have actually gotten better? I'd like to think so.

Suffering from this condition has ruined most everything good about me. Made me feel like death is the only thing left to look forward to.

I don't know about anyone else, but I'll take hope anywhere I can get it. As hope has become a very precious, very rare, thing to have.
 
Learning that PTSD is cyclic has been hugely helpful to me.

I had a good 10 years where I was essentially fine. Trial, error, & dumb luck created a situation where I was managing myself without really realizing it. After years of chaos & messing up my life but good, I found balance on accident. Stressors & shit would come up, and they were short lived bad days caught & extinguished by my coping mechanisms before they could flare up into full blown diagnosable symtomology.

I got protective as hell about some of them, but never really knew why... Until I lost all of them. New trauma, major life changes, and a domino of stressors bowled me right over & I'm back to square 1. This time I'm adding things into my life on purpose, as well as parsing what did & did not work before... Which should get the same results.

I think it's important -for me, anyway- to know that if I do this again? Completely nix all my coping mechanisms, especially in the face of new trauma? I'll also get the same results.

Knowing the results of taking care of myself & not? Both directions? Is kinda freaking fantastic. It really adds levels of control over a situation that on the surface feels damn chaotic. I'm still symptomatic as hell. Knowing that I have an out? And a way of setting up preventative measures? So if my life starts to go sideways again I can redirect it? That's huge.
 
Thank you Anonymous, you definitely struck the right chord with me. This has definitely been a topic with me and my T for the past year.

The idea of triggers that bring me back to the trauma... You are correct in saying that perhaps even the most little things can trigger symptoms like depression, anxiety, hyper vigilance, and disassociation. It happened the other day. I had a confrontation with a person, and instead of being present in the moment, all I could do is freeze and blank out.

And avoidance has proved to be detrimental, since I really can't predict when these triggers will appear in front of me and avoidance leads to desperate isolation. I cannot tell you how many months I've been trapped in my apartment..

I take your point, and I try to live in hope of a better future and enjoy the present moment. The thinking that I was used to before would say that the past, future and present are full of anxiety and fear. And, that has somewhat disappeared but it has been blocked by the obsessive thinking of "Am I crazy or not?" or "Have I recovered or not?" or "Am I normal or not?"

So thank you for pointing out that the ideas of remission and recovery can be thrown out the window. I know that these states are all relative to each person who experiences it. I guess that after years of psychiatrists, county hospitals and the general culture of psychology, remission has been defined by them and then put on me. I feel that a lot of the times, people who suffer from mental illness are negatively labelled by the very people who are there to care for them.

I would like to experience life in a way that is not defined by the "literature."
 
I remember talking to my therapist about this one time because I wanted to know if I could be "cured" of PTSD which to me meant to the point where I wouldn't experience any of the symptoms ever again, and my therapist confused me by saying she didn't see me as being diagnosable with ptsd but diagnosed me with anxiety even though I have the diagnosis of PTSD in 2011 several times. Something Antony helped me more than my therapist did on this topic, but after Athony told me my therapist told me basically the same thing so here it goes. The goal is to get to the point where you don't have so many symptoms that would cause you to be diagnosed. They would like to see you get to the point where you don't have any symptoms which would be amazing but if you don't have a certain number of symptoms then they aren't allowed to diagnose you but have to diagnose you as something else.
 
Something that also helps me to cope with PTSD you could say is. I think of PTSD as something like diabeties. There really isn't a "cure" for it but there are ways to manage it and you have to learn what works best for you to manage it. It will be easier to manage then other times, but you learn all you can about it and yourself and do your best to manage it so it doesn't have a huge impact on your life.
 
I'm at the five year point in treatment. Going to treatment helps me cope and be able to handle working. I'd like to think that I could taper off of so much treatment at some point. EMDR is starting to make things easier, day to day situations aren't so anxiety provoking.

Then I think, what if my husband died? How would I deal with losing that kind of support? Right now that seems like it would pull the rug out from under my feet.

I see the need for me to always think about the structure of my support and treatment and self-care. I feel that, right now, I am pushing forward to a state of being where I feel that I can be more stable overall. That I have some big goal to reach (if not "recovery" then ....?). I sense that I have so many unresolved issues.

So, I will keep on, however it goes, whatever it takes. Life is so much more enjoyable than it was. I'll go on shedding the layers and see what happens.
Life is starting to feel like one big adventure. (yeah, between the pain and confusion).
 
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