Sufferer I don't know what to do. ptsd & nph (normal pressure hydrocephalus)

[Lucycat]

Hi and Welcome to the forum.
I hope you find the information on here helpful and the people supportive - I know I have!
Regards, Lucy x

 

[NPHprogressiveC-PTSD]

medical doctor and it really is when it was being pressed on all the time it was always on day and night now It far less then it was but far more than I want. I lost my tool & skills to mentally deal with having it.it truly wouldn't matter what part of the brain it is the fluid crushed everything. the doctors delayed surgery 8 months and it took over a year to start to get my shit together. just look up "ptsd amygdala hippocampus" do some homework search over seas like England sadly America is slow on releasing information related to anything neurological. PTSD IS EMOTIONAL BRAIN DAMAGE.

 

[Suzetig]

I'm in the uk and it's fair to say the neurology of PTSD is a pretty new and contested science. The brain is incredibly elastic and neural pathways etc are capable of great change. There's lots of research that suggests PTSD as a permanent brain injury and equally lots of research to challenge this - and the majority of people do recover from PTSD, many of those without spending years in therapy.

 

[UnKnown-Self]

Hi and welcome to the forum @NPHprogressiveC-PTSD

Its MHO psychiatry is in its infancy compared other medical practices. The terms and diagnoses some of the doctors come up with are their own. That is not bad or good its Words. Words to help define feelings. According to the latest Official Diagnostic Manual ( I forget the acronym) there is just PTSD. We all know PTSD is anything but Just.
They recognize there are different levels of disassociation but again it's MHO "most" therapists denies it (DID) exists at all. My opinions are formed by my experience and lots of reading, drawing my own conclusions from my own experience.
Hydrocephalus is something I've never heard of so I will have to look it up later.
I don't know about fluid in the brain causing flashbacks. It is my understanding a flashback is triggered by an occurance in the current moment of NOW that a person emotionally connects with their past and often acts out not to the present but to the past. This can get messy and unexplainable in many situations such work.
I'm not quite sure what you mean by having multiple flashbacks at the same time.
I have moments I slap my head cursing and apologizing, acting out being both the abused child and the abuser.
Please beware of labels. Our past shapes who we are, how we respond in any given moment.
With awareness of self (selves) and learning Who You ARE, you might find you are not disabled but different.
You didn't mention if you currently have a therapist.

I think at the very least you need someone to advocate for you. Help you understand what all your options are.
I look forward to seeing your future posts

Alice & Assembly

 

[NPHprogressiveC-PTSD]

I'm in the uk and it's fair to say the neurology of PTSD is a pretty new and contested science. The bra...

In my case it doesn't matter both brain damage and ptsd with my own experiences have given me knowledge researchers can't have. I can't post pics but one 1/3rd of my brain was crushed from the center out pressing my brain into the skull. its funny the brain controls everything about a human being yet its a new field of research when the only change in mental healthcare in the last 200 years is the pills that don't work.

Hi and welcome to the forum @NPHprogressiveC-PTSD

Its MHO psychiatry is...

I'm sorry but diagnoses of anything with(nos) attached is not a diagnoses. Its a statement that your having a problem any we "the doctors" don't care to find out why your suffering. that these pills and if that doesn't fix a issue we (the doctors) don't care to understand or do testing for. if you have a heart problem (nos) they do additional testing to find out what the problem is. why fix a problem when they (the medical field) can profit from human suffering. then look at government historic uses for those drugs and mental health patients.. its pure evil!!

 

[Fiadh]

Hi and welcome. I think it's probably difficult in some instances for you to be able to differentiate what symptoms are coming from your normal pressure hydrocephalus- as you said fluid can be pressing on all different areas- and the brain is an amazing thing so you never know how it will react to that level of pressure and fluid. And what symptoms you would put down to your PTSD. But I suppose you are never going to know, so I would concentrate on symptom management and not even try and work out where it's coming from. I'm sorry you are having to deal with this condition on top and I hope they manage this for you in some way that provides you some relief.

 

[Justmehere]

What kind of support and counseling do you have?

 

[NPHprogressiveC-PTSD]

today none, I see a therapist and its pointless when the main cause of your abuse was the doctors and mental health care industry. when one runs around set up by neurolopshycologist saying scary shit and continuing to having basically none stop multiple flashbacks at once your family and friends don't stick around. I could have been saved by doctors a decade earlier but then I would have sued them for electroshocking me with hydrocephalus. doctors and cops have one thing in common the good one cover for the bad ones. I need to figure this neurological stuff in hopes to ever feel safe again.. doubtful at this point..