DID "downgraded" from did to osdd/ddnos?

[Keen]

Anyone have this happen? My T thinks I may not have DID after all, it may be one of the lesser dissociative disorders, because she hasn't seen different-enough-from-me-personalities at therapy. I think she may be right, I always wasn't super comfortable with the idea of having DID, wasn't sure it fit quite right. Its too bad mental disorders aren't like physical ones where we can just do a blood test to find what the exact problem is.

 

[whiteraven]

I'm wondering how she came by the DID diagnosis in the first place? I mean, what brought her to the idea that you had separate identities? I've not heard of anyone going from DID back to DDNOS, but I guess it's possible...

Glad you are more comfortable now with the current diagnosis. I know it really helps when you finally feel you're understood and you're on the right path to healing.

 

[Keen]

what brought her to the idea that you had separate identities?

Losing time/amnesia, both outside of and in therapy, and different parts taking over both outside and in therapy. Except for a few of them who are male and have different names, they mostly all seem to be me at different ages or with totally different perspectives.
She isn't certain its OSDD instead of DID, but is just considering it. She wants to get it right.

it really helps when you finally feel you're understood and you're on the right path to healing

Yes, this makes such a difference. I felt that when I was diagnosed with PTSD too, that my life and struggles made sense and someone else got it

 

[whiteraven]

Ok. Well, whatever you find out, what I discovered is that it is helpful to try not to focus so much on the diagnosis as it is to concentrate on what is actually going on within you. I remember I used to obsess over the fact that I had DID. It wasn't until I sort of let that go that I really felt free to begin to build relationships with those inside and learn about us as a whole.

 

[Keen]

@whiteraven, thanks for that advice, its really true that the specific diagnosis matters less than one's own experience and what one does to work on it

 

[theshadowoftheliving]

@Kassie, I'm sorry it feels so confusing. If it makes you feel any better, the ISSTD treatment guidelines are identical for OSDD-1 and DID .... So regardless of the label, nothing will actually change.

Those guidelines also identify two types of OSDD-1: not yet DID and not quite DID. So even if the label isn't DID right now, it could turn into that later. For me, i was the not yet version for a long time, and it was a hard place to be.

 

[Keen]

treatment guidelines are identical for OSDD-1 and DID

Thanks for your response! Yes, its a comfort knowing they are the same treatment so in a way the diagnosis doesn't matter.

Those guidelines also identify two types of OSDD-1: not yet DID and not quite DID

We haven't clarified which subtype I may have yet. It can feel pretty confusing, that's for sure.

 

[theshadowoftheliving]

OSDD is just "Other Specified Dissociative Disorder". OSDD-1 comes in two subtypes - 1A and 1B. Essentially, without amnesia, and without fully delineated parts.

If you are flirting with the DID diagnosis, you probably have OSDD-1, maybe DID that hasn't been confirmed.

(It took a part of mine taking over and hooking up with someone at a party for my therapist to decide that I had DID - until then, it wasn't clear enough that my parts had the capacity to "take executive control").

 

[ILoveLife]

And remember, research is very much in it's infancy so things will change and be more accurate in the future.

With all the checklist diagnosis for mental illnesses that can lead to misdiagnosis, I don't tend to get too hung up on labels nowadays. :)

:hug: