• We are a multilingual website again. Read the notice about this.
  • Understand AI use at MyPTSD: all AI use is explained in our AI help page. AI use is by choice here. It exists if you want it, but does nothing unless you choose to use it.

Sufferer It Started Before I Can Remember

Status
Not open for further replies.

presentjoy

Silver Member
Hi.

I chose the name presentjoy because it's kind of a goal rather than reality. But I feel like it's something to keep breathing towards.

I've found solace in art, yoga, cycling.

My husband is also here, a recently joined member. We are both still reeling after events in April. While he was directly affected, and I assumed a supporter role, as things unfolded it was clear that my history of trauma meant that we both were affected. As a consequence we are both trying to address what amounts to two lifetimes littered with traumatic stuff.

I'm diagnosed with Alexithymia. This is part of an Autism Spectrum diagnosis I received at 32. A great deal of what I experience is sensory processing related. I have a diagnosed auditory processing disorder. All the sensory stuff means that I have gone through life literally on the defensive most of the time. Noises repeatedly startle me, smells overwhelm me, light touch upsets me, grit under my feet repels me. My muscles are always tense, and I have IBS symptoms from constant stress. I never really realized I was experience a kind of stress of being. So I feel bombarded by the world. I dream of moving to the country and building an eccentric house off the grid.

The ASD stuff also means I can really struggle with interpersonal relationships, although this isn't separate from Alexithymia. In many ways, I'm extremely introspective, I intellectualize a lot, I am artistically expressive, and yet I can be clueless about some things, and emotionally feel very blocked. In some ways the ASD and the trauma aren't separate. I think a lot of autistic people are traumatized by the world. Or experience trauma. Disabled people in general are more likely to experience trauma of all sorts (medical, abuse, neglect, etc).

Other stuff I include on my trauma plate are being 7 months in the womb when my mother experienced a highly traumatic event, being teased and bullied in grade school, and unwanted sexual stuff when I was 14. And another relationship that maybe was inappropriate, but I couldn't tell, and it ruined my first marriage.
Those are the big ones, with no detail.

I think in general I'm afraid on this forum that some things I may attribute to autism may be dismissed as PTSD. Or maybe I could be helped by seeing things that way. Regardless, I want to heal what can be healed.

It has been very difficult, as my husband Jemini (another new user) has written about, to navigate these past months. Our marriage was already precarious. We are supportive of one another, but we trigger one another. It's my intention that this site isn't going to be a place for any of our patterns to play out, it's more that we can gain understanding and support, by both of us learning about and healing from PTSD. I know we want nothing but the best for one another. I'm not sure, maybe it's weird for both of us to be on the forum, but I saw how BigBear asked if I was here, and thought maybe it wouldn't be such a bad thing.

Thanks for reading,
presentjoy (pj)
 
Hey PJ - Welcome :)

I am sorry you are going through a difficult time now. I hope you find support here.

Take care of yourself.

KK
 
Hi presentjoy,

Welcome to MyPTSD forum! :)

I love your user name as a goal and it is a great way to keep that goal right in front of you. I hope you find the information and support here helpful as you work on healing.

Wishing you the best.

Debbie
 
My daughter is diagnosed PPD-NOS but it some ways it's very similar to Autism, so I can kinda relate. She's extremely sensitive to some things and especially when she was little, everything was terrifying to her. And because her sensory integration is so out of wack, she had a really hard time getting used to things and she felt like she was constantly under attack from everyday life. I wouldn't get caught up in labels, Autism, PTSD, whatever. If you find something that helps, then great! It doesn't matter if it's meant to help people with PTSD or Autism, as long as it helps. But I do think the way that the brain deals with past traumas and sensory integration dysfunction (that many people on the Autism Spectrum have) may be similar. You're always checking, always worrying, always tensed up and you have to really work to be calm and relax. As someone who suffers from PTSD, I've found myself relating more and more to my daughter. When I'm hyper-vigilant and every little sound and bit of light and spot of dirt is SCREAMING at me, I'm so, so, so very sympathetic to hard hard it must be for my daughter to navigate through life. I wish the very best to you and your husband!
 
Thank you to all for the welcome, it means a lot. I've started venturing out onto other topics. Started one of my own, but I like to see what's here and not create new unnecessary threads. I feel like the diary is a long way off. It all feels like too much to process, and at the same time, I'll admit I feel like an impostor here. I'm pretty sure I'm not unique in that respect.
(I felt like an impostor at the abuse survivors support group I was put in when I was 15)

I love your user name as a goal and it is a great way to keep that goal right in front of you. I hope you find the information and support here helpful as you work on healing.

Thanks Debbie. I feel like this is now a full time job, the rest of the stuff I do is exta-curricular.
I try to remember to breathe. I try to keep present. Sometimes, it seems I'm living so much moment to moment that I have a hard time planning anything!

She's extremely sensitive to some things and especially when she was little, everything was terrifying to her. And because her sensory integration is so out of wack, she had a really hard time getting used to things and she felt like she was constantly under attack from everyday life.

Thank you D123 for your support and for sharing about your daughter. It's true that labels aren't that useful to get caught up in (but they are pretty sticky har har)

I think maybe it relates to impostor stuff.
 
Nobody wants to suffer. If you're suffering, then you belong. If you're trying to help someone that's suffering, then you belong. Everybody's story is different. I'm trying to remember to breathe and be present, too. It's VERY hard for me. I don't know how to relax. I'm new here, too, and still trying to find my way around the site.

And labels are terrible! I know we all do it, but I try to remember all the time that the labels we put on ourselves and others don't define us!
 
Status
Not open for further replies.

Donation drives

2026 Donation Goal

Goal
$1,800.00
Earned
$910.00
This donation drive ends in
0 hours, 0 minutes, 0 seconds
  50.6%

Trending content

Featured content

Back
Top Bottom