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Kittie's Journal

It sucks when the body rebels against itself, taking the mind with it. I'm not sure what MDD is, hyperthyroidism is something I do understand (my thyroid was removed but meds for it made me feel awful so I quit them and feel fine). You've been dealing with with stuff for ages, I can relate. I hope you recover from it all and feel better than ever! If I had a magic wand.... However, I'm sending healing vibes!

Wow, your load got even heavier! That sounds like such a challenge. I understand sleep apnea, mom used a CPAP. Elevated liver levels, thats me, too. If its from the benzo, anxiety or other cause, I don't know. I'd like to see you overcome all those things and you have my total support! Everything is connected to everything else, one thing goes wrong and the whole system gets out of whack. I wish there was an easy solution for us all.

I'm glad for the knowledge, you've given me more insight than the doctor regarding this matter! Thank you, Dr Woodsy! The physician didn't mention withdrawal, just said "this is the last time I'm going to prescribe this" and didn't clue me in to what's to come. You've been more insightful than the person getting paid to help people!

In the old days, they gave out drugs for everything, today getting what is needed is a difficulty after they realized they caused a lot of addiction problems. I'd pass on the blood pressure drug after seeing firsthand the negative effects it had on my mom. I'd be happy drug-free, I think most of it has pros and cons. It will likely take more effort than I realized but I'd be willing to try.

I looked up benzo buddies, a lot of helpful info there, too, so I thank you for that reference. Good luck getting Dr KnowItAll to read anything there, but I sure will and will benefit from it immensely.

My body is so sensitive to everything, I prefer to skip the 2 drugs if the one is removed. Over 10 visits to the ER in a month, at the same time of day, with the same symptoms and just a temporary solution only to be sent home with no answers until a doctor who was tuned in to renal issues CT scanned me and found the problem. I was relieved to know I wasn't losing my mind after all, but the fear of a tumor freaked me out. I hope something is done with me and I'm not left in limbo. I read my state has talked about "selective care", meaning young people or certain conditions will be cared for first, leaving cancer patients and older folks by the wayside in delayed care. I'm not a cancer patient but I do have multiple issues, so I may have been put into the category of 2nd class people for treatment. How much is real news and how much is BS is anyone's guess.

Your info has been very valuable to me! I wish you a smoother ride than you've had.

I have kidney stone problems if I take vitamins containing calcium or foods like spinach, cheese, yogurt. Cranberries help break down the stones because they're high in acid. I've had too many kidney stone surgeries and don't want to do that again ever. The last one was last year. Cheese is my weakness! Vitamin D is one I need to avoid.

I'll take any suggestions you have on supplements to lower cortisol. I may have read some, but not everything. No one knows more than someone who's been there!

I've read some and it's a wake-up call for what lies ahead, not looking forward to it, but want to do what's best for my body. If I had my way, I'd have the cortisol causing problem removed before removing the anti-cortisol medication, but I only went to veterinary school, haha.

Thank you, there's strength in knowing people truly understand. Sorry your insight comes from personal suffering though. I'm glad for the knowledge you've shared with me and someday, I'll be able to pass it on to someone else!

Take care!
You are welcome, friend. Best wishes on this upcoming journey.

I take zinc at night as it decreases morning Anxiety for me (likely cortisol related). Had to research a lot on zinc as you can take too much.

Sorry you've got one of those know it all doctors!

Chat ya soon,
Woodsy1
 
You are welcome, friend. Best wishes on this upcoming journey.

I take zinc at night as it decreases morning Anxiety for me (likely cortisol related). Had to research a lot on zinc as you can take too much.

Sorry you've got one of those know it all doctors!

Chat ya soon,
Woodsy1
Thank you again for good info!

I'm glad this helps you! It sounded ideal, but I swallowed my gum when I read it can cause kidney damage...but I only read one article at webmd. I have lots more research to do! You've given me a starting point!

I've never researched Klonopin, I'd probably scare myself! It seemed like the perfect solution, however it may be more harmful than good. If I could replace it with zinc and be healthier, I'd go for that!

Much more research to be done but you've steered me down 2 good paths...benzo buddies and now zinc! Many thanks!

I'm very glad I've found this forum and have gained a little something from many people. This is a powerful place in so many ways and I'm grateful for it! Smile!
 
Thank you again for good info!

I'm glad this helps you! It sounded ideal, but I swallowed my gum when I read it can cause kidney damage...but I only read one article at webmd. I have lots more research to do! You've given me a starting point!

I've never researched Klonopin, I'd probably scare myself! It seemed like the perfect solution, however it may be more harmful than good. If I could replace it with zinc and be healthier, I'd go for that!

Much more research to be done but you've steered me down 2 good paths...benzo buddies and now zinc! Many thanks!

I'm very glad I've found this forum and have gained a little something from many people. This is a powerful place in so many ways and I'm grateful for it! Smile!
You are most welcome. I would certainly not think of think as a substitute for Klonopin. You will find out soon enough if there is such a thing as a replacement for a benzo that you've been on any amount of time. In my case, the answer is a definite "no!" (Unless you substitute another benzo, ugh)

Keep researching!
 
You are most welcome. I would certainly not think of think as a substitute for Klonopin. You will find out soon enough if there is such a thing as a replacement for a benzo that you've been on any amount of time. In my case, the answer is a definite "no!" (Unless you substitute another benzo, ugh)

Keep researching!
Thanks for the info! No easy answers to my complicated problem! I'm starting to think that I won't have peace within my body's balance until the offending growth is removed. Then I'll be dealing with mainly PTSD and likely benzo withdrawal. I may be in an imaginary dream world on that one, but the thing increases the PTSD symptoms. Instead of getting better with time, its gotten worse so its up to me to try to reach the right person who can get the ball rolling. A new scan since the one 2 years ago is the starting point, it may be large enough by now to meet the requirements. Gotta start somewhere...

In the meantime, I'll keep researching!

Best wishes!
 
I s
Thanks for the info! No easy answers to my complicated problem! I'm starting to think that I won't have peace within my body's balance until the offending growth is removed. Then I'll be dealing with mainly PTSD and likely benzo withdrawal. I may be in an imaginary dream world on that one, but the thing increases the PTSD symptoms. Instead of getting better with time, its gotten worse so its up to me to try to reach the right person who can get the ball rolling. A new scan since the one 2 years ago is the starting point, it may be large enough by now to meet the requirements. Gotta start somewhere...

In the meantime, I'll keep researching!

Best wishes
I sure hope everything works in the direction of a quick and satisfying resolution for you.

Stay in touch!
Woodsy1
 
Thank you, I will! I wish the best for you also!

Take care!
I lost the appropriate post to respond to but did want to say that I was on a daily benzo for about 4 years - Klonipin, I think, but have taken more than one benzo over the years - and I cut back and off of it in less than a month, if I remember correctly. I went through nasty, short-term withdrawals but not the long-term withdrawals I have heard of from coming off of benzos. People are different and I imagine there are a lot of factors involved in benzo withdrawal. But I would be alarmed if a doc didn't bother mentioning the withdrawal aspect. That seems mighty irresponsible to me considering how physically addictive benzos are.

I am sorry you are having to go through this. I also kinda hope you find another doctor. This sounds like it could be a hard situation.
 
I lost the appropriate post to respond to but did want to say that I was on a daily benzo for about 4 years - Klonipin, I think, but have taken more than one benzo over the years - and I cut back and off of it in less than a month, if I remember correctly. I went through nasty, short-term withdrawals but not the long-term withdrawals I have heard of from coming off of benzos. People are different and I imagine there are a lot of factors involved in benzo withdrawal. But I would be alarmed if a doc didn't bother mentioning the withdrawal aspect. That seems mighty irresponsible to me considering how physically addictive benzos are.

I am sorry you are having to go through this. I also kinda hope you find another doctor. This sounds like it could be a hard situation.
Sadly, a LOT of docs have no clue about the difficulty some folks experience coming off of benzos. 😥
 
I lost the appropriate post to respond to but did want to say that I was on a daily benzo for about 4 years - Klonipin, I think, but have taken more than one benzo over the years - and I cut back and off of it in less than a month, if I remember correctly. I went through nasty, short-term withdrawals but not the long-term withdrawals I have heard of from coming off of benzos. People are different and I imagine there are a lot of factors involved in benzo withdrawal. But I would be alarmed if a doc didn't bother mentioning the withdrawal aspect. That seems mighty irresponsible to me considering how physically addictive benzos are.
Thank you for sharing your experience, it gives me a little hope that it won't be as hard as I'm expecting. Preparing for the worst and hoping for the best! Each of us are different, so I don't know how my body will react. I've noticed as long as I stay physically busy, the activities keep the cortisol down but I have to sleep sometime and that's when cortisol goes through the roof. I've deliberately kept busy over 24 hours and at the 4am panic time, nothing happened- with NO medication.
I am sorry you are having to go through this. I also kinda hope you find another doctor. This sounds like it could be a hard situation.
I didn't like the new Dr the first time I met him and I generally like everyone. His smartass approach to me from the first hello made me uneasy. He had my complete history but didn't care what any lab results were or CT images. He said these things don't cause problems in most people. I may have to travel 100 miles to another clinic but it would be worth it. I'd really like to be done with them all.

I'd keep the therapist I have now, I get decent advice from him. He actually speaks my unspoken thoughts regarding various issues, so I know we're connecting well.

The drawback of living in the boonies is lack of decent medical care. My mom's Dr here, at her first visit, apologized for being late to her appointment because he was delivering a calf in distress! She liked him! Too bad he also retired. All the good ones are going away, replaced by fresh out of school newbies with attitudes. After only 4 visits, I do think it's time I find a better Dr. I have a hard time even getting a referral from him for a specialist. Insurance won't pay without a referral so I have to go through the channels. This one is a brick wall. Ugh!

Take care and best wishes!
 
Sadly, a LOT of docs have no clue about the difficulty some folks experience coming off of benzos. 😥
My therapist has some knowledge in that area because he volunteers at a drug rehab office. I expect I'll bring up this issue next time we talk.

In the meantime, I'll try another experiment and cut my dose in half to see how my body responds. I might give myself a head start on weaning myself off. The Dr said no more with no plan to cut down. I'm sure that would be a shock to the body. I wonder what his grades were in school! "D-" in listening to patients!
 
My therapist has some knowledge in that area because he volunteers at a drug rehab office. I expect I'll bring up this issue next time we talk.

In the meantime, I'll try another experiment and cut my dose in half to see how my body responds.
You read my mind! Only I was thinking try only reducing 1/4 dose or less. Not medical advice, as I'm not qualified. Just what I was thinking.

Due to the long half life of Klonopin, you won't likely know how you're really reacting to the reduction until about 3 to 7 days after the change. The experience, when it hits, may take you off guard. It gets me every time, even now that I expect it.
I might give myself a head start on weaning myself off. The Dr said no more with no plan to cut down. I'm sure that would be a shock to the body. I wonder what his grades were in school! "D-" in listening to patients
Doctors! Lol 🤣
 
The drawback of living in the boonies is lack of decent medical care.
I hear that. The only good thing I have to say about injuring my hips in Portland last year was that I didn't do it just 3-4 months earlier in rural central Oregon where PT was an hour away and specialists were 2 hours away. I lived there for 14 years but I could not have afforded the gas to get to all my appointments, because on top of everything else, we really needed to drive an AWD SUV to live out there in winter.

And it's also hard when your comfort zone is the country and you have to travel to a more populated area to see a doctor or worse yet, to see many doctors.

My husband and I are still seeking a viable retirement idea because of this. He likes the country but I don't want to watch him die on our kitchen rug because the ambulance high-centered on an elk carcass. You know?
 

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