Ignoring Medical Issuesn Able

[Bookoffee]

For the past few months I have had this throbbing pain in my lower left back. It reminds me of when I had to go through my hesterectomy. The pain has now moved to the right side. I haven't been able to get out of bed since Thursday.

I have a blood disorder called Factor 5. I have issues with clotting blood and have had 4 blood clots in my lungs already. I have to keep my blood INR between 2 & 3. When it was tested last Thursday it was at 5.

I don't know if one thing relates to the other in any way. I have to face the fact that I need to see a doctor or worse go to the hospital. I become so scared that when I am with a doctor, I forget how to talk and explain my issues. I just agree to their questions and try to figure out what they want to hear. I can't focus in on ,myself and what is wrong.

I am having a very difficult time trying to stay calm which is only making my pain worse. I am shaking with the knowledge that I will be touched today. The tghkught alone hurts and I can't even touch my aimals or having them c.lose time.

 

[Lucycat]

So, if your INR is 5 i.e. outwith the desired range , does this mean you are currently more likely to form clots or more likely to bleed?

Either way I would suspect that your back pains could be associated with it and I think you need to get checked out with some urgency. I hear that you are scared, but this cannot be ignored.

Write it down if you have to . "I have severe back pain, my INR is wrong and I am really frightened"

Best wishes, and let us know how you get on.

 

[GWhizz]

I assume they treated your high INR by reducing/holding your warfarin or giving vitamin k? They don't sound related unless your having symptoms such as PR bleeding or something. Maybe go to the ED if you haven't got your latest INR result back to make sure it's at therapeutic again. Both don't sound great to me.

 

[Bookoffee]

I just got home from the hospital. I had to have two CT scans and two urine tests. My INR is at a 1, blood in my urine and the scans are what I believe he said hazy. He told me that he didn't know what was wrong and see my PCP ASAP.

 

[joeylittle]

I have a blood disorder called Factor 5.

I have factor 5 too *fistbump* It's a real pain with the clots (mine aren't in my lungs tho, which would be super-scary, I'd bet). Definitely see the PCP. Also, you may need to work a little more closely with the monitoring of the INR and making your diet pretty rigidly consistent - both types of food and amounts. I can't go longer than 3 weeks, sometimes two, between INR checks.

Thinking of you - it's a tough thing.

 

[Bookoffee]

Yes @joeylittle it is a task for me. My INR has been a mess since last Thursday, it is in a danger range and i have yet heard from anyone as to how much medication I need to take or if I need to start giving myself shots...and i am a bit worried about a doctor telling me that my CT scan is "Hazy". What does that mean? any idea? No, they had no idea what is going on with me and discharged me with having a muscle cramp but to follow up with PCP right away to get another scan done.

I tell my boss what is going on and she tells me I cant return to work without a doctors note. My doctor cant see me till Friday so I told her I would be out for the rest of the week. She fired back asking why I will be out and made some comments about work. I explained that she told me I couldnt come back without a doctors note and I cant see the doctor until Friday. In between all of these text messages, I am on my web email alerting staff that need to know I will be out and which clients need first attention.

In the text after she learned I wont be in for the rest of the week, she told me I do not have approved time to work from home so stop emailing about clients. I am trying hard not to text her back and explain the importance of why I was writing an update on a client that was released from a mental health hospital last week.

I am not sure if I should laugh or cry.

 

[joeylittle]

My doctor cant see me till Friday

Does your doctor know the situation? You might want to push back on being seen earlier.

You've got 2 things going on - the CT and your INR.

Did you ever work with an anticoagulation clinic for your monitoring? - like, how did you have your INR checked previously? If you worked with a clinic, you can just call them and make an appointment. If you were having it checked through your PCPs office, get an INR check scheduled for as soon as you can - even if the Dr. doesn't have an appt with you til Friday, most places you can get lab work done separately, and at least you might be able to make a tiny adjustment to your coumadin on your own, in advance of that Friday appt.

I've no clue what 'hazy' would mean. I do know that if your last INR was 1, your next step in that regard should have been someone adjusting your coumadin dose. But it sounds like no-one did.

 

[Bookoffee]

No one made any adjustments. I called and left a message at my PCP to see if they knew about everything. I haven't heard back. I have my own machine to track my INR. It hardly ever works at my house because it cant heat up enough. I keep it at work so I can put the machine under the light for a couple of hours to heat up. Otherwise I would go through 3 to 4 strips.

I will need to go into work later tonight when my wife gets home to grab the machine.

I just realized my birthday is in 2 days. I will be 40...

 

[joeylittle]

I will need to go into work later tonight when my wife gets home to grab the machine.

Good. Getting that dosing working again is important. And I'd recommend calling your PCP office again and telling them you were told to be seen ASAP by the doc who did your CT scan. Sometimes that helps.

Thinking of you. And happy pre-birthday!

 

[Bookoffee]

I called my doctor twice today to find out how much cumiden I need to be taking. I haven't had any since I have been in the hospital. I don't have my INR machine so I am not sure what range I am in. I can't do much as it takes all my engery. The pain meds I was given doesn't even touch the pain. I am wondering if I should go to the bigger hospital in the city. It is just so difficult for me to be in the waiting area, it is always filled with over 50 people.

I am not sure if the pain is fake or not. I don't know what to think or do. I wish my wife was home

 

[Bookoffee]

I talked with my doctor's MA. She said the CT scan showed scar tissues in my tubes and that since I haven't had a blood clot in the past 6 months, they are taking me off Coumadin and giving me a new med where I won't have to check my INR. She didn't tell me the name and was just rattling everything off so fast that I couldn't keep up with her.

She didn't know that they had done two CT scans and that the doctor told me that the one with the dye was hazy and to have another done.

Nothing is making sense. I feel as though everyone is just guessing and keep filling up my pain meds.

Happy 40th Birthday eve.

Welcome to the second half of my life. Starting out just as the beginning.