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I Check Out Healthy; Why Do I Feel So Awful?

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theshadowoftheliving

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I've been going through a battery of tests to figure out my physical symptoms. Everything comes back normal. Nothing is wrong with me. On paper, I have no reason to feel the way I fo, and I feel like doctors are just writing everything off as related to my psychiatric history.

But I nearly (or do) pass out when I stand up or move too quickly; I've lost fifteen pounds; my hair is falling out; I'm so exhausted that it's all I can do to drag myself through my day. Sometimes my hands turn blue. Plus, my heart does weird things all the time (just not when I show up at the doctor) and I'm having a lot of weird tingling sensations in my legs and sometimes the world disappears and I go blind for a split second or two or five.

I'm scared because I feel like something is really wrong and I don't know what it is or how to get doctors to see past my history of mental illness. Any advice? I feel like my friends won't listen anymore and I'm not going to tell my family .....
 
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I'm not a doctor, but have had a lot of physical symptoms due to the trauma I went through. PTSD can have a huge impact on your body/brain. There is a lot of research being done about how PTSD effects the body. Stress & anxiety can effect us in so many ways. Just from my experience the symptoms you have listed can be physical signs of PTSD and trauma.
 
It's a very very good thing to rule out medical causes before looking at (much less assuming) psychological causes.

All the symptoms you listed? Have serious medical causes. They're also all symptoms of anxiety.

Like a panic attack... Isn't a panic attack until heart attack has been ruled out. It's very, very easy to do so. ECG or EKG. Voila. Not a heart attack, no cardiomyopathy (parts of the heart always die during a heart attack, and that shows up on the test even after the heart attack is over... Squiggly lines have an eff-load of info in them). But while it's not a heart attack, it's only "probably" a panic attack, until your blood work comes back that checks for about 40-50 different things. None of those? Pretty safe to call it a panic attack.

It's not that symptoms are pawned off on psych issues, it's that you cant test for psych issues easily, the same way you can for medical issues. Once we can, they'll undoubtedly be added to the standard battery of tests. But med will still be ruled out first, as med issues can kill you, fast. Psych issues kill slowly (if at all).

But I nearly (or do) pass out when I stand up or move too quickly; I've lost fifteen pounds; my hair is falling out; I'm so exhausted that it's all I can do to drag myself through my day. Sometimes my hands turn blue. Plus, my heart does weird things all the time (just not when I show up at the doctor) and I'm having a lot of weird tingling sensations in my legs and sometimes the world disappears and I go blind for a split second or two or five.
Med ruled out:

Most of these are sympathetic nervous system things.

Blood getting yanked to your core, for example, protects you during times of violence from bleeding out. It also means you're not getting much blood to your arms and legs. Which causes numbness & tingling. There will be occasional surges of oxygenated blood to your limbs (for flight or fight), but that's very short lived, and mostly your sympathetic nervous system wants blood safely dead center. Which also can causes dizzines, lightheadedness, tunnel vision, etc. Oxygenated blood not being super keen to leave the core (heart & organs)

Weight-loss (or gain) are both functions of anxiety shutting off digestion. The parasympathetic nervous system handles Rest & Digest (and others). Sympathetic shuts that off. So first off you aren't hungry, and second off if you do eat? Puking and diarrhea as your system isn't turned on to digest it. Aka? Weight loss if your metabolism is wired that way, weight gain if it's wired the other way. ALSO, can cause dizziness, lightheadedness, etc. Your brain runs on sugar. (Glucose is the only nutrient that feeds the brain). If your blood sugar drops? Because you're not eating, or not keeping food down? Voila.

A whole lot of et cetera.
 
I just can't get doctors to listen. They're not testing these things very deeply. I WANT to not have anything wrong with me, but especially now that the tests I've had were negative (all so so so good) I'm being looked at as even more of a head case.

I definitley understand these things as potentially trauma related, but that happened twenty five years ago, so why all of a sudden am I falling into pieces? I just feel like I've felt stress before, and this feels so incredibly different and scarier. I feel like my body is shutting down and I don't know what to do about it.

I want to cry. If something really is wrong, I just won't ever know because I'm not actively falling apart, and subsidized health insurance is just so crappy ....
 
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I remember hoping they'd find something physically wrong with me. That seemed so much easier to deal with. That seemed fixable, where as the PTSD not so much. It is frustrating. I was relatively okay for 25 years as well until everything started falling apart.

You are not alone.
 
I remember hoping they'd find something physically wrong with me. That seemed so much easier to deal with. That seemed fixable, where as the PTSD not so much.

I think I feel this way. I'm devastated that I have to deal with this now, potentially for the rest of my life devastated that someone chose to rob me of my childhood and now my years as an adult. I'm just devastated. And frustrated. I want a fix; I want to be taken seriously. I want to be treated as more than just a crazy woman with inherent character flaws because she can't sheen to pull her $&:$;/!? together.

I want to just claw my skin off or drink until I can't feel anything anymore. I'm so ashamed at myself and my reactions to something that was so long ago.
 
Hmmm. I'd suggest doing neither (clawing your skin off or drinking til you can't feel anything anymore). Part of my own story is that I was almost written off as a hypochondriac... til they found the problem... but I fought my way through it for 6 years before I got my diagnosis and the right course of treatment. A lot of it though was private pay.

Track your symptoms... it's hard to say what's going on right now, but I understand, absolutely and completely the frustration with the medical community and if I didn't receive my treatment, I would have been dead right now.
 
Thanks, @The Albatross. Trying to be calm. Not drinking, but struggling with self -injury impulses. It's so hard because I'm so broke; self-pay isn't an option and my subsidized insurance isn't cutting it. I'm not in therapy and struggling to get that covered as well - looks like I have atleast a month before I can get any services in that arena. I feel like I'm disintegrating, physically and mentally. I just hate feeling awful, hate being in pain, hate the stupid remarks the doctors tell me about just trying to relax more or be healthier. I do everything right. And if that's not enough, I want to do nothing right at all - I want to cut and drink and cry and jump in front of a train.
 
The dizzy upon standing and the blue fingers and heart doing funny things could be a circulation/cardiac issue; could be dehydrated (need choc milk , gatorade); blood pressure checks in lying sown, sitting, standing positions. Your labs could be tested for UTI. EKG test. I agree with Friday Jones; the physical has to be ruled out first. Some of your symptoms sound similar to me and they are ruling out mine and my problems appear to be a very little physical and then there's PTSD. Just be you; they will figure out just because you are having a hard time doesn't mean you are not trying and that you aren't smart. My PTSD was under control for over 10yrs before it reared it's ugly head at me again. It worked before maybe we can push it aside again
 
I've been going through a battery of tests to figure out my physical symptoms. Everything c...
I feel I could have written this easily myself in January this year.

It is good news if everything is coming back as healthy. I know right now you don't think so.

You do know that trauma, PTSD can cause psycho-somatic symptoms and chronic pain? Also, your interpretation and narrative, commentary mind on those symptoms you have will play havoc with your mind, and body chemistry and keeping you very much in an adrenalized state of pure fear and panic.

my heart does weird things all the time (just not when I show up at the doctor) and I'm having a lot of weird tingling sensations in my legs and sometimes the world disappears and I go blind for a split second or two or five.
The symptom with the heart. Is it like fluttering sensations? Or palpitating? Or even like it's thumping out of your ribcage? Or all of these? If so, I had this too and my heart checks and tests. If you have had an all clear, it's a panic symptom. Adrenaline makes the heart beat faster, flutter to get you ready to take action to fight or flee. It isn't a dangerous symptom at all. . .but so unpleasant, scary even! But, it's not dangerous, just panic and this is when you need to find ways to relax yourself.
The tingling sensations are usually caused by hyperventilating, when we breathe so fast, we are actually taking in more oxygen (this isn't dangerous, it's just uncomfortable) and all you have to do is slow down breathing and regulate it. The blood changes in our body when we have too much oxygen, hence the tingly feelings. I remember having this for 8 days solid and it freaked the f*ck out of me, until I realised it was a panic symptom.
The vision problem - the pupils will dilate massively when you are in fight/flight mode as your body is looking for potential threats, since if feels like it's under threat!
Why is this happening then? Like you said here:
I'm scared because I feel like something is really wrong
It is simply because you are scared and because you believe and have convinced yourself there is something wrong. This was my issue too in January. What might help is reading plenty on fight/flight, going to Therapy, speaking with supportive loved ones or friends or just people. . .but mainly what helped me was educating myself as much as possible about these symptoms. It's now passed 6 months and I understand every symptom that has came to me and there was many. . .almost into the hundreds, if I am honest! Mostly all psycho-somatic too! I basically went into fear of fear mode. I woke up alert and hyper-vigilent, aware of a symptom, panicked about that, the symptom would intensify, another one came alone, I would stress out about that one too as well as the other one and then more would come. . . this cycle would happen all day, every day, non-stop!
You said:
I don't know what it is
The reason the symptoms are either now gone for me, or a few are now under control is because I took the fear out of them and you can only do that when you do know what they are. Remind yourself that the doctors know what they are looking for, they have checked you over and have found nothing biologically, physiologically wrong with you, they have stated to you it's a mental issue and of course that needs to be seen to for your own sanity as these symptoms will only continue to get worse the more you become scared and terrified of each and every symptom.

The symptoms that kicked off for me, were: dizzy spells, brain fog, chest pains, headaches, racing terror/horrific thoughts, stomach cramps, like I was dying, like I was terminally ill in pain, IBS, felt like surges up and down my body, tingles up and down the arms and legs, hands and toes, not feeling with it, not feeling right and these symptoms lasted for days and days, and if they would end, another symptom came along, swollen tongue sensation, lump in the throat, that feeling you get when you are on a rollercoaster and the insides of your organs feel like they are rising upwards, impaired vision, unwanted images, unbearable images, unable to get out of bed, cramps in the back of the legs, ringing in the ears, creepy crawly feelings all over the body, heart tremors, hyperventilation, irregular breathing, shallow and laboured breathing, days on end of not feeling I am breathing right, like I can't catch my breath, yawning so much, sighing heavily, tingles around the face, mouth, lips, numb nose, cold and hot, shaky all over, feeling lethralgic and weak, crushing heart feeling, organs felt like they were twisting, ripping and tearing apart, and many more symptoms.
The fear and pain was chronic. The endless questioning - what is happening to me? Why don't the doctor's know? This surely can't be panic, it has to be something serious, it feels so physical, not in any way mental. Yet. . .it was my fear causing these symptoms, the over-thinking, analysing, the constant watching myself, watching my body, watching for symptoms to change, driving myself insane basically.
The mind and body work together and are linked, never underestimate what the power of real traumatized terror can do to the body and the effects it can have. But have faith that with some understanding you can take the fear out of these symptoms and you will start to notice a shift and change, and don't let the setbacks dishearten you!!!
 
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