Sufferer I don't know what to do. ptsd & nph (normal pressure hydrocephalus)

[NPHprogressiveC-PTSD]

I don't know what to do, I have developmental learning issues, that were mismanaged my whole life, normal pressure hydrocephalus (a form of dementia) and every known form of ptsd. I had fluid pressing on my ptsd button of the brain causing up to 4 flashbacks at once for years.. I had all the pains of being disabled but misdiagnosed under diagnosed and was blamed for not responding to treatments that never involved testing or brain imaging. the medical abuses and public ideas that ptsd is just ptsd like everyone else's is untrue. the more events one goes through the more triggers one develops. and they reinforce the past traumas. when the doctors cause it to progress to cover up their mistakes how can one trust them again. I don't think I can recover from whats been done to me anymore and i'm only 41. I can share images of the fluid on my brain.

 

[joeylittle]

Hi @NPHprogressiveC-PTSD - welcome to the forum.

I can share images of the fluid on my brain.

Regular members can't upload images; you can read about account upgrades to see if that's something you are interested in. If you are having troubles, open a help ticket and staff will give you a hand.

What caused your PTSD, initially, do you mind if I ask?

 

[NPHprogressiveC-PTSD]

a violent father, emotionally shut down mom, being learning disabled, but it went fullblown when I found my step father dead. it was progressive due to the nph


that's the basics

 

[Kintsugi]

Have you considered a shunt?

 

[Suzetig]

I'm not sure what you mean by "progressive" and "full blown". PTSD is PTSD, there are times people are more symptomatic than others and some people are more/differently impacted especially where there have multiple trauma or different types of trauma. It sounds a bit like you're trying to justify being sick enough to be here when that isn't necessary. You have PTSD, it's enough that you need support.

Welcome to the forum.

 

[EveHarrington]

Welcome to the forum! :hug:

 

[NPHprogressiveC-PTSD]

I'm not sure what you mean by "progressive" and "full blown". PTSD is PTSD, there are times people are...

progressive- I already had ptsd neurologically its emotional brain damage to the hippocampus area of the brain. I also every day had fluid pressing on the same area of my brain, in fact I'm considered lucky due to the fact it was so evenly crushing ever aspect of my brain so in Doctors terms No One area I lost even function over my entire brain but the true horror is I lost parts of ever aspect of my brain. I had constant flashbacks daily for years with progressing intensity and increasing number of flash backs at the same time from all different ages as young as 3-4 four flashback happening at the same time day after day after week after week for years. then the doctors don't get me started on the abuses they did to me without ever doing an mri or any neurological testing or looking at my medical history.

 

[Suzetig]

I understand hydrocephalus as a progressive illness, which is what you're describing - yes that may exacerbate PTSD symptoms but the PTSD itself isn't progressive in that way.

 

[NPHprogressiveC-PTSD]

I understand hydrocephalus as a progressive illness, which is what you're describing - yes that may exa...

it is when everyday it life on elm street. when everyone who ever loved you left you behind and you've been in isolation from all the emotional abuses happening at the same time think of it like being attacked everyday by everyone you knew for a few years straight. that's some traumatic stuff. I have flashbacks of it so yeah it was progressive and it stole 16 years of trauma work and skill building to manage it from me. 4 flashbacks everyday all day when alone never ending now I have no one I'm far more brain damaged and found out it was always preventable I needed brain surgery instead I developed major life skill problems and haven't progressed in life in about 20 due to the combo. now no chance for an independent adult life. yet the systems to help me never did one damn thing over 20 years to help a developmentally disabled adult learn to have independence. I was blamed by everyone for having an undiagnosed neurological illness thrown away like human trash time and time again by everyone and blamed by doctors because their pills didn't work so in 2002 they electroshocked me and refused to release the records say I would need a lawyer to get them. I couldn't leave the house for over a year after that one and it took over a decade to recover enough to figure out what had happened. then I saw the records at the hospital last aug. but wasn't functional enough to get a copy then. i'm barely functional now. its abused by everyone 360 degrees in my life.

 

[NPHprogressiveC-PTSD]

it is when everyday it life on elm street. when everyone who ever loved you left you behin...

what would you call it when your traumatized until everything becomes a trigger and I'm doing "well" all thing considered. in England they say special education students are predisposed to having ptsd due to being disabled alone then add on it got 100 time worse as an adult plus I had all the normal reasons to have Childhood multi trauma c-ptsd.

 

[Suzetig]

n England they say special education students are predisposed to having ptsd due to being disabled

I've never heard that said in the uk. Yes more likely to be abused, but no disposition to PTSD - where did you get that from.

And yes, I understand too well that feeling that everything is a trigger - I've been there but it wasn't a "progressive" PTSD it was untreated PTSD. When I really worked in therapy and engaged in my own recovery, the symptoms slowly lessened.

 

[Justmehere]

what would you call it when your traumatized until everything becomes a trigger and I'm doing "well" all thing considered

I'd call it PTSD. It is sadly not a unique experience.

Was it a medical doctor or therapist who described to you "a PTSD button" to try to help you understand why things are difficult now or is that something you came up with to try to explain it?

Are you working with anyone to get support for basic life skills and for the mental health symptoms?