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General Things To Know When Dealing With PTSD (As a Carer)

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THANK YOU for this thread, it's put quite a few of boyfriend's behaviours into context. There are things that I thought were just him or depression, like the self-loathing and energy fluctuations, that sound like they are actually pretty standard for PTSD. And it seems I'll have to find a way to live with the incessant TV that drives me totally insane because it's so distracting and there is never peace and quiet, because it seems that's kinda the point ;)

It's been really heartening to hear from the long-term partners/carers that living with PTSD can become... what's the best word here... routine. Not necessarily easy, but that it's possible to find strategies and understandings that work long-term. Boyfriend and I have been living together for nearly 2 years and holy moly it's been a tough 2 years, but I'm not going anywhere (and he's mostly stopped asking me to and reminding me that I can - so relieving to really really know that this has been PTSD talking btw) because it's also been a wonderful 2 years with my very best friend in the world. Hearing about the lives and relationships that people have built together in spite of PTSD brought happy tears to my eyes :')
 
I think I can speak for a lot of us sufferers who have spouses supporting us. . .We didn't fall in love with you because you help us, we fell in love with you because of who you are. Sometimes, my only joy in life is seeing my wife (or kids) just be who they are. . .not who they think they need to be because of my disease. Please be yourselves. Please don't sacrifice yourselves on the altar of our PTSD.:)

And this. This is amazing, thank you. This will help me to be strong in continuing whatever I'm doing in my life when boyfriend is not doing well.
 
The problem with "giving them space" is that some sufferers do not have the communication skills to let anyone know that is what they want. Or if there is any hope whatsoever that if you give him/her space or silence, will it do any good and will he/she ever come back? That is why folks write them off, who can deal with indefinite dismissal?
 
The problem with "giving them space" is that some sufferers do not have the communication skills to let anyone know that is what they want.

Please forgive my response in 2 ways. First, I am not trying to be harsh and second, this is the only metaphor that comes to mind right now.

I can't say I believe that I rely on my wife to disclose every "want". True, there should be clear communication but it is not always there. So, just like a small child, or even a pet, I think that one has to learn to read the non-verbals. This is a very rough analogy, I know and I don't want to imply sufferers are animals, of course. But yesterday, with all the grandkids over, part of the time was spent helping them know when to back off with our new dog. To know when he wants to be left alone. THEY were wanting to play with him non-stop. :) And we need to learn when not to stick our hand out so we don't get bit.

Communication includes all the non-verbals that we all use to give as well as receive information. Not just with PTSD.

And if the sufferers behave, we give them a treat. Oops, did I just say that out loud? :laugh:
 
As a sufferer (which, while awkward, seems to be this forum's shorthand for someone with PTSD), a few other points that I don't think have been (adequately) addressed:

  • Every case of PTSD is different. Every person with it is different, too. While you can draw some generalities, you should be aware that advice and/or issues here may or may not apply.
  • Most of the advice for carers, family members, and so on assumes that they weren't the ones responsible for the trauma which resulted in an individual having PTSD. This is not always the case, especially in cases where the trauma is related to abuse -- domestic or otherwise. Needless to say, things get a lot more complicated when this assumption isn't true.
  • "I love you" and the like can easily be triggering in cases of abuse-related PTSD, especially if the abusing individual(s) used the phrase to justify harmful or traumatizing conduct.
  • The concept of boundaries is often oversimplified in discussion and used as a catch-all for "things I don't like" or "things I'm not willing to tolerate". This is not really appropriate -- there are a variety of types of relationship issues, and not all are created equal. A boundary is a limit, and deals with how your space, your property, and so on. Someone leaving, retreating, or walking away cannot, by definition, be a boundary violation. This is especially true if they are doing so to defend themselves in the face of your boundary violations. Remember: The core of a boundary violation is violation... and, frankly, intrusion.
  • Boundaries are really f*cking important. It's been said before, but I do think it needs to be repeated -- preferably in every post.
  • There is a huge difference between being supportive and being pushy or demanding. As lines go, it's an important one -- be careful not to cross it.
  • Similarly, there is a huge difference between being willing to listen and prying. It's been mentioned above, but needs to be repeated.
  • Seeking help, therapy, or the like may actually not be a good idea, depending on circumstances, the nature of the trauma, demographic variables, and the local professional community. Take me, for instance: as a disability rights activist and psych professional (before the whole "PTSD" thing became a factor), I'm well aware of and have spent quite a bit of time documenting a local semi-underground industry in my area dedicated to depriving people with certain disabilities of their civil liberties for profit. This would be less immediately terrifying if I didn't actually have one of those disabilities.
  • Plans are important -- and sometimes the only way someone with a stress-related illness (not just PTSD) can accomplish something. I, for one, will often get pretty damned invested in my plans... and watching them fall apart due to well-meaning interference can be correspondingly traumatic. (See boundary violations, above).
  • It often helps if you warn someone of changes, events, or intrusions well in advance.
  • In the case of intrusions, ask first. Also, do so well in advance, without pressuring... and (learn to) take no for an answer. Being able to know that I can count on someone to respect my boundaries is tremendously reassuring. Being forced to defend them, by contrast, is tremendously stressful.
  • Do not make decisions on their behalf "for their own good"... especially if their trauma was related to abuse (in which case there's a damned good chance it's a trigger on top of being a typical boundary violation).
  • Be careful not to make promises you can't keep.

Now that I'm done indirectly telling you far more about my traumas and experiences than I'm really comfortable with, I suppose I can get into addressing a few points/questions that were brought up earlier.

A while back (about five years ago, from the datestamp, but...), cyanide asked about the whole "appreciation vs. space" thing. I address it somewhat above, but should probably add that it's worth noting that it doesn't actually mean anything in a concrete sense. Someone who's having a flashback (or even recovering from one, really) isn't going to be living in a world of abstractions and (that sort of) feelings -- they'll be in (and, frankly, overwhelmed by) far, far more immediate and concrete matters.

"I'm here for you", by contrast, is comparatively more concrete -- and thus could easily be far more reassuring (but see my point about generalities above). A reminder of where they are and what is going on may be still more helpful under circumstances where that's relevant.

Tangentially, I'm not exactly fond of the PTSD cup article referenced above, or at least how it defines "good stress". I'd more refer to that as "daily stress", "routine stress", or "normal stress". "Good stress", to my mind, is the stress from things like (in an extreme example) winning the lottery... but, well, this is getting into semantics. I think I have more than enough here to post.
 
Enjoyed everyone's list great. Here are some additional things that I have found with my spouse whose PTSD is from Vietnam era.
1. Tends to be self-absorbed.
2. Many times unable to be sympathetic or compassionate towards others. (occasionally can be)
3. Difficulty communicating effectively, usually goes into attack mode.
4. Has a hard time admitting mistakes or flaws.
5. Says that he is "just surviving"
6. Very concerned with safety issues.
7. Hard worker--work a holic.
8. Even though diagnosed at times doesn't believe it.
9. Feels often like a victim
10 Depression and very negative about most situations.
My coping skills.
1. Be careful when I bring issues up. I may have to wait for days to find the right time.
2. Have my own interests especially for when he withdraws.
3. It has taught me to be more independent emotionally. Not totally a bad thing.
4. Appreciate the ways he shows love by being concerned about my safety and financially.
5. Remember that this is a mental condition and to be more patient.
 
I like that everyone here brings comfort to other's. I am new to this and everyone's advice has been so helpful!! it's been so difficult not to make any contact but I understand why I can't now thanks to you all. I believe in us & we'll get through this ❤
 
I like that everyone here brings comfort to other's. I am new to this and everyone's advice has been so he...

I don't know your specifics but just know this stranger has given the little prayer that I can. I've always been bad about it but something about the situation I am going through makes me come a bit closer to God and learn to actually pray with some heart. It may not mean much to you, but it is all I can offer to let you know you have one more prayer coming together to help you.
 
Thank you so much it does mean a lot, I'll take it, I've been doing a lot of praying myself. I recently started dating a 8 year vet who did two tours in Iraq. We spent a wonderful valentines day together & then I felt him pulling away, when i asked him if it was something I did he assured me that I didn't. I had no idea he had ptsd so I asked for more answers. He said he has bad nightmares among other things & just simply said he needed time. I decided to try & research a little which led me here I've gotten so much insight from every on here! I'm just giving him his time now patiently waiting for some kind of communication from him.
 
Thank you so much it does mean a lot, I'll take it, I've been doing a lot of praying my...

My lady pulled away for about two months that I could tell and then just went to her moms for what she says is for good. However she begged me not to leave her and other such before finally flipping to the mindset she is currently in where she is gone. No idea what is going to happen but for once in my life I am going to just let God do His work and not second guess it. It is hard to believe she will come back but, I feel that I'm being told to be patient and to just follow what God wants and things will turn out as they should. He always pulls me out of the fires in life. Not always exactly how I want, but always exactly how I need it. Hoping and praying that her back in my life is part of that plan.
 
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